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Tag Archives: tga
So, how about those doctor’s appointments?
Hello friends! I’m not sure if you’ve heard, but babies take up a lot of time. Despite the fact that I’m staying home from work for awhile to take care of the beast, I am only now finding time to update … Continue reading
Posted in After Discharge
Tagged After Hospital, Arterial Switch Operation, Lurie Children's Hospital, tga
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Verity loves to eat; forgets to breathe.
I’m not nearly as good of a writer as Dana so I’ll keep it brief: Seven days post-op, I had a near breakdown last night as Verity was crying her head off, in turn causing her vital monitors to go off … Continue reading
Two Steps Forward, One Step Back
Hello friends! I’m going to apologize in advance for an abnormally discombobulated post; the days are really starting to merge together, and the timeline of everything is hazy. Plus, it’s been a couple days since we last updated. But truly, … Continue reading
How Verity Got Her Food Back
Hello again, friends! As I sit here typing this, Mike is cuddling Verity whilst tapping his feet to the beat of some Baby Einstein tunes. He loves this machine so much that I might have to go buy it for … Continue reading
Verity’s Medicines
Hi everyone! As I’m sitting here in Verity’s hospital room while she is sedated, I decided to report on the types of medicine she is getting right now (50 hours post surgery): Midazolam (50 mcg/kg/hr) – a sedative to keep … Continue reading
A New Start on Verity’s F-ed up Heart
Hello again! Happy Valentine’s Day! This heart-filled day is especially meaningful to us this year because today we can celebrate what has so far been a very successful arterial switch operation (Jatene Procedure) and recovery! Spoiler alert: Verity’s heart is now … Continue reading
Baby Verity’s First Week: Preparing for Surgery
Hello again, friends! Fast forward a bit from our last post, and Mike and I are typing this from the Family Great Room on the 15th floor Cardiac Care Unit at Lurie Children’s Hospital. Today is the big day – … Continue reading
Small post, small world realization
Hello again! I alluded to an additional small world encounter on my last blog post, and I’ll just share a brief synopsis here. Mike and I have been pretty open about telling people about Baby V’s heart defect, because we … Continue reading
Another fetal echocardiogram!
Hello again! I just learned about the option to schedule when my posts are published. This is super-exciting because I’m technically writing this shortly after finishing the last post! I know we have about 30 intermittent readers of the blog, … Continue reading
Cadillac Insurance Celebrations
Hello, again! This might be a snooze unless you’re interested in medical insurance coverage and crazy doctor’s bills. Now that Mike and I have had a couple weeks for Baby V’s diagnosis to sink in, I’ve allowed myself to start … Continue reading
CHD, TGA, OMG! 