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Category Archives: After Surgery
So much for regular updates – 21 months later…
We got really, really lazy with this blog. But if you think about it, that’s a wonderful thing. Neither Mike nor I identify with the label of “heart parent,” and I feel almost silly when I mention to people that … Continue reading
Verity Goes Home!
Hi everyone, Yesterday was 11 days post-op and Verity is ready to go home! All her prerequisites of going home has been satisfied: eating and breathing at the same time, generally having an appetite, and weight gain on the correct trajectory. … Continue reading
Posted in After Surgery
Tagged arterial switch, Arterial Switch Operation, Lurie, Lurie Children's Hospital
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Verity loves to eat; forgets to breathe.
I’m not nearly as good of a writer as Dana so I’ll keep it brief: Seven days post-op, I had a near breakdown last night as Verity was crying her head off, in turn causing her vital monitors to go off … Continue reading
Two Steps Forward, One Step Back
Hello friends! I’m going to apologize in advance for an abnormally discombobulated post; the days are really starting to merge together, and the timeline of everything is hazy. Plus, it’s been a couple days since we last updated. But truly, … Continue reading
How Verity Got Her Food Back
Hello again, friends! As I sit here typing this, Mike is cuddling Verity whilst tapping his feet to the beat of some Baby Einstein tunes. He loves this machine so much that I might have to go buy it for … Continue reading
Verity’s Medicines
Hi everyone! As I’m sitting here in Verity’s hospital room while she is sedated, I decided to report on the types of medicine she is getting right now (50 hours post surgery): Midazolam (50 mcg/kg/hr) – a sedative to keep … Continue reading
A New Start on Verity’s F-ed up Heart
Hello again! Happy Valentine’s Day! This heart-filled day is especially meaningful to us this year because today we can celebrate what has so far been a very successful arterial switch operation (Jatene Procedure) and recovery! Spoiler alert: Verity’s heart is now … Continue reading